When I wrote my book, ‘Happily Ever After,’ about Xavier’s first year, I had a lot to say. It wasn’t just about Down’s Syndrome, but also about my experiences of being a single, working mum trying and often failing to keep my head above water.
Now Xavier is five, I still find I have a lot to say, about him and about myself. About our life together and about my life in general. Sometimes it might be about Down’s Syndrome and others it might be about shoes. That remains to be seen.
As I negotiate the world of ‘special needs,’ or whatever the hell we call it, with my son, and fight with every ounce of my being to give him the best upbringing I can, who knows where it will lead?
The point is no one does, no matter what they tell you.
I am determined to equip Xavier to be a contributing member of society, in whatever way he can be, we will see possibilities not limitations; challenges not obstacles.
Xavier has taught me that in our short time together. He has shown me that the world is a big place that can accommodate us all, but we all need to find our place in it.
That is the same for all and sometimes I feel that I am still trying to find mine.
Xavier constantly surprises me. Sometimes in a good way, like when I was told he could read out loud, despite being incredibly reluctant to talk, or when he wrote his first letters and numbers at school.
And sometimes in bad ways, like when he took his shoes off at playtime and tried to drown them in the water tray, or when I was told that he stood on the table at lunch time as if it was his stage, and had his orange confiscated.
But with each action, both good and bad my child is growing and developing his character and I can’t help but be frustrated, annoyed and proud all at the same time.
So, if you are interested in any aspect of our journey, and I have no idea where it will take us, then please stay with us and follow our blog.